Sunday, October 28, 2012

Its been awhile....

Owen watching football.
He does that a lot with dad.

Still loves his monkey!

Its been a busy month.......

Here's the gist....

-Owen had surgery on Oct 1. Surgery was a success, but recovery was a different story. He spent two days in the PICU after surgery.

-We now have pulmonology in the picture. Owen gets a Pulmicort breathing treatment every day. He takes Singulair every day. He also gets Xopenex as needed.

-Owen has a sacral dimple. And he has a birthmark on his back which lines up with his spine. This apparently is sometimes evidence of a tethered spinal cord. This was a big scare. However, the MRI showed he does not have one!!

-Owen is eating lots of different foods. We call him Mikey a lot because he’ll eat anything: squash, green beans, peas, sweet potatoes, etc. He’s making progress with the cup too; baby step progress, but progress. We’ve moved up to the straw cup and he seems to like that pretty well. We can’t wait for him to drink. He’s sure got eating down. Hopefully we’ll see light at the end of the tunnel soon. We’re looking forward to the day that the gtube is no longer needed.

- We ended the overnight feeding. So far, he still sleeps through the night.

-OT services start in Nov. Speech and nutrition will continue.

-We got the home and community based waiver. So he’s good with daycare until Aug 2013. It also covers any healthcare needs that insurance doesn’t.

-We also get respite with the waiver. We’re looking forward to a registered nurse being our babysitter 50 hrs per 6 mos.

-It appears that his hearing is good. He did have some fluid in his middle ear, so we do have to go back for another follow up to be sure. -The pediatrician said this is normal with babies.

-The whole in his heart is closing!! This was fantastic news. We don’t have to go back to the cardiologist for a year. And that’s just to be sure. They said he has a “normal” heart. :o)

***Owen weighs 15lbs and 3oz. He's 25.25 inches long.

So, the new plan is to update the blog at least one time per month J

--We will however put up new pictures of Owen in his Halloween costume!