-Owen had surgery on Oct 1. Surgery was a success, but recovery was a different story. He spent two days in the PICU after surgery.
-We now have pulmonology in the picture. Owen gets a Pulmicort breathing treatment every day. He takes Singulair every day. He also gets Xopenex as needed.
-Owen has a sacral dimple. And he has a birthmark on his back which lines up with his spine. This apparently is sometimes evidence of a tethered spinal cord. This was a big scare. However, the MRI showed he does not have one!!
-Owen is eating lots of different foods. We call him Mikey a lot because he’ll eat anything: squash, green beans, peas, sweet potatoes, etc. He’s making progress with the cup too; baby step progress, but progress. We’ve moved up to the straw cup and he seems to like that pretty well. We can’t wait for him to drink. He’s sure got eating down. Hopefully we’ll see light at the end of the tunnel soon. We’re looking forward to the day that the gtube is no longer needed.
- We ended the overnight feeding. So far, he still sleeps through the night.
-OT services start in Nov. Speech and nutrition will continue.
-We got the home and community based waiver. So he’s good with daycare until Aug 2013. It also covers any healthcare needs that insurance doesn’t.
-We also get respite with the waiver. We’re looking forward to a registered nurse being our babysitter 50 hrs per 6 mos.
-It appears that his hearing is good. He did have some fluid in his middle ear, so we do have to go back for another follow up to be sure. -The pediatrician said this is normal with babies.
-The whole in his heart is closing!! This was fantastic news. We don’t have to go back to the cardiologist for a year. And that’s just to be sure. They said he has a “normal” heart. :o)
***Owen weighs 15lbs and 3oz. He's 25.25 inches long.
So, the new plan is to update the blog at least one time per month J
--We will however put up new pictures of Owen in his Halloween costume!
----btw, look how this bib used to fit me. This was when I wore it on St Patricks Day!
My first day of daycare....
I'm really realxed going into it. No tears from me.
Mommy on the other hand, she had a hard time leaving me.
I gave her lots of hugs.
And I showed them all what a big boy I am.
Things are moving right along. We've had a busy couple of weeks. I went back to work the Tuesday after labor day. It was tremendously hard to leave him for 8-9 hours. Fortunately, we had grandma visit to help with the transition. She stayed home with him the first week. The second week, he started daycare at Sproutlings. He went half days for two days and a whole day for one. Next week is the real deal. No more grandma to help us adjust..
He's been doing great there so far. The daycare seems really experienced with special needs such as his. He has circle time with the other babies. A lady came and played the guitar for them one day. Then they had a puppet show. He's not used to all the excitement there yet. He's not yet sleeping much when he's there.
They work with him well on his feedings. He's been doing well with eating his oatmeal cereal. Its been a very positive experience for him. Right now, he just gets it 2 x per day. We have to move slowly and make sure he's balanced nutritionally.
He weighs 13 lbs and 5 oz as of, not this past Friday, but the one before. He'll be weighed again on this coming Tuesday. We have a follow up with the neonatologists.
We also had pictures taken by the fabulous Traci Gould. Here are a few....
Owen weighs 12 lbs 9.5 oz! He's seven months old today. His corrected age is officially four months. That means its time to try food! So far, he seems to like his oatmeal cereal. The nutritionist and the speech therapist say some babies like Owen skip right over the bottle, and move into spoon feeding and sippy cups.
I'm still good at nap taking. I think I get that from my mom.
My new high chair is great. Its very comfortable.
My eyelashes are so long. I'm hopng someday soon my hair catches up with that length.
I play really hard. Sometimes I get so sleepy that I fall asleep in the middle of my play, and I just can't let go of my toys.
I'm getting to be such a big boy!
Both of my grandmas do make me smile :)
Owen is doing well. He's doing great sleeping through the night.He's working hard on his exercises to improve his oral motor skills. At this point he's not as fussy during that time, and he even smiles a little bit. That's exactly the goal we've been working on; to help him have a more positive oral experience.
His gagging episodes are better. They still happen, but not as frequently, not as long, and not as severe. The Zantac is helping.
Owen is set up to start Sproutlings on the 10th of Sept. We're still waiting to hear about Medicaid.
Brevon is already introducing me to spiderman cartoons!
I'm so relaxed! Dad knows how to help me chill. And I do love my sleep sheep!
Owen started his new feeding schedule last night. He slept
through the night from 11pm to 6am. It was great! He woke up in a happy mood
this morning. He did tummy time, rolled from his side to his belly and from his
belly to his side. He enjoyed play time on the floor for longer than usual. He
took some of his 8:30am bottle. He went back to sleep for his feeding via the
Gtube afterward. He wasn’t as fussy during the afternoon; which has been his
new trend. So far, it looks like a good night’s sleep is going to make a big
difference for him. We’re hoping that solid rest will help him be more organized
with his suck, swallow, breathe skills, and he will be more successful with bottle
We’re working on new exercise strategies to help him improve
his feeding skills. We’re back to only doing the bottle two times a day again.
But we’re doing more positive oral exercises. The nutritionist and the speech therapist
are wonderful! They’ve both got a lot of experience, and are helping to explore
options for increased success.
Owen also started Zantac yesterday. He hasn’t been on that since
before the Gtube. The gagging episodes appear to be reflux; minus the spitting
up of course with the nissen. They say it will take a week to see the effect of
the medication. We’re hoping that eventually it helps him be more comfortable and more
open to feeding experiences.
He weighs 11lbs and 3oz!! –Thank you, Gtube, for his steady
growth. And brain development!
I went to the good ole L&N building today. We have to
wait 7-10 days to receive the determination on his eligibility for continued Medicaid
coverage. I sure hope he’s eligible. We don’t have a lot of childcare options
Tomorrow, we’re visiting Sproutlings. The First Steps people
say its so great it will “blow you away.” We want to be sure that Owen is in
the right hands during the daytime hours. Its not on the way to work like Kidz
Club, but it sounds like it’ll be a place where we can be confident he’s
getting the best care.
Owen weighs 10lbs and 15oz!! He's 23 inches long!!
He's been doing a little better lately with his bottle feeding!
We met with the nutritionist and have some new plans. We're working to help
Owen sleep through the night. Its important for him to be undisturbed through
the night in order to help him form healthy cycles with sleep. It is also
important with my upcoming return to work.
Owen presently gets feedings at 10, 2, and 6; around the clock. Each feeding runs for 1hr. And he's currently at 140ml per feeding. Before his 10am and his 10pm, he's given the bottle first. However much he takes from the bottle is subtracted from the amount that goes into the pump.
We can't yet discontinue his 2am feeding due to his difficulties with
tolerating volume increases. If we eliminate the 2am, we would have to add the
missed amount from that feeding to the other feedings. That would be too much
of an increase in the other feedings for him to tolerate. So the plan is
for him to get his two formula feedings on a continuous feed throughout the
night from 11pm to 6am. Then he'll still have breast milk feedings at 8:30am, 12pm, 4pm, and 8pm.
We have a new plan for his weekly volume increases too. We hope the slower increase will help him adjust easier and not have the gagging episodes.
We're also going to increase the bottle feeding from 2 x per day to 4 x per
day. Friday we meet with the speech therapist. Hopefully, we can continue with
his improved ability to bottle feed.