Monday, April 23, 2012
Today was a good day. Owen had another eye test. The condition is regressing, and since he's almost term now the risk of it worsening at this point is very low. He doesn't have to have another test for 2 weeks!! He's been more relaxed today. The OT and the PT had a visit with him today. They'll be checking him out; assessing his muscle tone and such. They'll be teaching us some baby massage techniques! He's breathing well. They turned down his settings again today on the ventilator. The nurses were saying they could hear him crying a little bit today. That's a good sign that the swelling in his airway has decreased enough for him to have breath and sound around his tube. We're still hoping and praying that Friday is the day! We thank you for all the love and prayers. Please continue.
Sunday, April 22, 2012
Owen is resting well now. He's had an overall restless day today. Early this morning he was very agitated and to the point of throwing up. They had to give him some versad to help him relax. They're working really hard to keep him from pulling his tube out. Our poor little guy wants to be done with the ventilator. He's a term baby now, and he's ready to be more active. That tube makes it hard for him to move around.
On Wednesday he'll start another steroid course, and if all goes well, they'll try him off the ventilator on Friday. Please pray for him and send him all the positive energy you can. Thursday the 26th was his due date. That was the initial talk of when he would come home. It looks like we've got a way to go.
He weighs 4lbs and 3oz.
On Wednesday he'll start another steroid course, and if all goes well, they'll try him off the ventilator on Friday. Please pray for him and send him all the positive energy you can. Thursday the 26th was his due date. That was the initial talk of when he would come home. It looks like we've got a way to go.
He weighs 4lbs and 3oz.
Saturday, April 21, 2012
Owen is doing well today. There haven't been a lot of changes in the past couple of days. He's been resting well, taking it easy, and leaving his tube alone. He's been desating less and less and recovering well when he does. He's on a new ventilator. Its called the NAVA and it helps him to be more independent with his breathing. Its pretty amazing how it works. It only helps him when he needs it, so he's breathing a lot more on his own. One more step to being off the ventilator. We so hope its soon, and that there's no going back.
Thursday, April 19, 2012
Owen's eye exam today showed no worsening of the condition. He's on an inhalant steroid treatment now every 12 hrs to help with the airway issue. The inhaled steroid is better because it doesnt have the same level of side effects. The hope is to try him off the ventilator in a week or so, if all goes well. They've increased his feedings again. He's at 32 ml every 3 hrs. He's still maintaining 4.1 lbs.
Wednesday, April 18, 2012
Owen is doing pretty well. He's back down to 15 on the ventilator setting. His oxygen level is down to 21. And he didn't desat while we were there tonight. He weighs 1.86 kilograms. That's 4.1 pounds!!!
They're starting him on some Zantac. The pulmonologist suggested it; saying it may be reflux that's causing the irritation in his airway. It's time to wait and see again.
Looks like he is at kosair to stay. They feel with his difficulty getting off the vent and staying off, it would be best. All the specialists are there, they say, and it works better in his favor. Seems to me, he gets lost in the crowd there. He used to get so much attention at university. At kosair, there are so many babies, and so many more fragile than him. If nothing else, it helps me count our blessings. Things could always be more challenging.
Please keep praying for him. Tomorrow he has another eye exam. And we don't yet know even a tentative plan toward extubation.
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