A short clip

Owen was discovering the benefits of moving his lips without a big tube in the way. He was busy blowing bubbles with his slobber. It was so cute!

Owen's off the Ventilator!!!

They took him off the ventilator at 1:30 today. He's on a high flow nasal cannula. His oxygen level with that is as low as it was on the ventilator. They've checked his blood gases and monitored his levels. All is well. We went up early today and took it all in. He was resting very well. A couple of times he managed a little squeak through his sneezes, but he hasn't found his sound yet in crying. We can't wait to hear his cries.
He's using more energy to breath. He had a little more difficulty maintaining his temperature, but he was bundled up a little more and did well staying warm. They'll be checking his weight later tonight. He's burning more calories now, so he may lose a little weight.
They'll check his blood gases again in the morning. We're hoping and praying that he continues to do well.

Owen is down to 10 on the ventilator. They report that he handled the decrease with ease, and they may extubate him later today. I'm so excited and so nervous. Please pray for our little guy. 

Owen is doing pretty well. He continues to move down on the ventilator a little each day. The talk is to have him off of it at the end of the week. He's being weighed on a new scale; now that his bed is no longer also a scale. He seems to be maintaining weight pretty well, even with the diuretic. He's closer to 3 lbs and 9 oz now. He hasn't lost yet.

Yesterday was a good day! Owen had his eye test, and his condition has improved. They will continue to check on it every week. We're not out of the woods yet, but things are looking better for his vision. He weighs 3 lbs and 8 oz. That's been steady for 2 days now. He's taking a new diuretic that is safe to take longer. This is in effort of helping him not hold so much fluid on his lungs. His ventilator settings are steadily being lowered. His gas levels have been good. He also graduated to a new bed which is open. As long as he holds his temperature up, he'll get to stay out of the incubator. Thanks for the thoughts and prayers.

Owen is on a yo-yo diet

After a few days of up and down weight gain, Owen is up again to nearly 3 pounds 8 ounces! He has had a good day today and Mom Is doing kangaroo care right now. We're supposed to hear how his eyes problems look tomorrow night at 6 PM. We'll let everyone know how that goes. We are so worried about him and we hope we get great news that his eyes have improved and that he doesn't need surgery right now. Thanks for all the thoughts and prayers! Our little family has needed them lately.

Our sweet little Owen has had a rough stretch. On Monday he was finished with the steroids, but took a turn in the opposite direction than we had hoped. They had to up his settings on the ventilator and raise his oxygen levels significantly. He's had increased secretions and increased fluid. The weight gain we were so excited about, wasn't really a great thing. It has been fluctuating since Monday, but is still around 3lbs and 4oz. Yesterday and today, things have improved, but they're still not where they were or where they need to be for him to get off the ventilator. His next eye exam will be tomorrow or Friday. Please keep him in your thoughts and prayers.